Terms of use

1. Website

Identity

The website available at the following address: https: //marih.fr (hereinafter referred to as the ” website “) and the application entitled Mast’O (hereinafter referred to as the “Application”). Application “) are published by the Filière de santé maladies rares immuno-hématologiques MaRIH, piloted and financed by the French Ministry of Health and housed at Hôpital Saint-Louis, Pavillon maladies rares, 1, avenue Claude Vellefaux – 75010 PARIS (hereinafter referred to as ” MaRIH “).

Publishing Director

Ms Amélie Marouane

Contact

Email address: contact@marih.fr

Hosting

The Site is hosted by OVH, whose registered office is located at 2, rue Kellermann – 59100 ROUBAIX.

2. Social networking

Also published by MaRIH:

Facebook page: https: //www.facebook.com/Filiere.MaRIH/;
The X account (formerly Twitter): https://twitter.com/Filiere_MaRIH ;
LinkedIn company page: https://www.linkedin.com/company/filiere-de-sante-maladies-rares-marih/?viewAsMember=true ;
YouTube channel: https: //www.youtube.com/channel/UCbI-SakTTbR8-biFlYXdJEA
Instagram account: @filiere_sante_marih ;
The Spotify podcast Filière de santé maladies rares immuno-hématologiques MaRIH.

3. Content and use of information

All content, pages, scripts, texts, graphics, photographs, illustrations, presentations, icons and databases on the Site and/or the aforementioned social networks and/or the Application are the exclusive property of MaRIH. All rights of reproduction or representation are strictly reserved. Consequently, any reproduction, representation, use, adaptation, modification, incorporation, translation, commercialization, in part or in full, of the Site and/or the social networks and/or the MaRIH Application by any process and on any medium whatsoever (paper, digital, etc.) is prohibited without the prior written authorization of MaRIH, under penalty of constituting an infringement of copyright and/or designs and models and/or trademark. Logos, trademarks, iconography relating to all other companies and products mentioned on the Site and/or on social networks and/or on the MaRIH Application are the respective property of their authors and/or owners.

4. Hyperlinks

When using the Site and/or the Application, MaRIH reserves the right to make recommendations of third-party or partner services. Consequently, users may have access to various links directing them to third-party sites and/or the sites of potential partners. MaRIH shall under no circumstances be held liable for :

the content of sites referenced on the Site and/or on social networks and/or on the MaRIH Application; and
information or content provided by third parties and/or partners.

MaRIH has no control over hypertext links (other than referral to the Site by the Application). Consequently, MaRIH does not give any guarantee concerning in particular:

the accuracy, quality, completeness and comprehensiveness of the content of the indexed websites; or
difficulties in accessing and operating indexed websites; and
can in no way be held liable in the event of a dispute arising between a website indexed on the Site and/or on MaRIH’s social networks and a user, as the operators of indexed websites are solely responsible for the content of their site.

5. Processing of personal data

When browsing the Site, users may be asked to provide personal data, in particular when communicating with MaRIH via the contact form on the Site and by e-mail. The provisions relating to this section are available in the privacy policy accessible on the Site under the heading ” Privacy Policy “. In accordance :

Regulation (EU) 2016/679 of the European Parliament and of the Council of April 27, 2016, known as the ” RGPD ” on the protection of individuals with regard to the processing of personal data and on the free movement of such data; and
to the law n°78-17 called ” Informatique et Libertés “of January 6, 1978, as amended by Law 2004-801 of August 6, 2004 on data processing, data files and individual liberties;

Users have the right to access, modify, rectify, limit, port and delete their personal data. To do so, the User must contact the support department by e-mail at the following address: contact@marih.fr. MaRIH is committed to the confidentiality and protection of user data.

6. Changes to legal information

MaRIH reserves the right to modify the present legal notice at any time, in particular in order to take into account any legal, jurisprudential, editorial, functional and/or technical evolution. The prevailing version is that which is accessible online on the day the Site is consulted. Any consultation of the Site after publication of the modified legal notice implies unreserved acceptance of the new legal notice.

7. Liability

MaRIH makes every effort to ensure, to the best of its ability, that the information published on the Site is accurate and up-to-date. MaRIH declines all responsibility:

for any imprecision, inaccuracy or omission relating to the information available on the Site;
for damage resulting from modification of the information on the Site and/or the Application caused by fraudulent manipulation by third parties; and
for any damage, direct or indirect, whatever the cause, origin, nature or consequences, caused by the access of any person to the Site and/or the Application or the impossibility of accessing it, as well as the use of the Site and/or the Application and the credit given to any information coming directly or indirectly from the latter.

8. Applicable law

The Site is governed by French law.