Privacy policy
- Person responsible for processing the personal data collected
MaRIH is responsible for processing personal data.
- Type of data collected
Data is collected on the Site as part of its use and is that which enables MARIH to identify Users directly or indirectly.
This may include the following categories of data concerning its Users:
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- personal data, i.e. first and last name, profession, e-mail address, landline and/or mobile telephone number;
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- connection data such as IP address and browsing data such as cookies.
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Users who communicate the personal data of a third party must confirm that they have the consent of this third party to the use of the latter’s personal data by the Site.
- Purpose of the personal data collected
The personal data collected on the Site are used only for :
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- enable the User to register for MaRIH training courses;
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- to keep the User informed of the latest developments in its business;
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- send targeted content to the User, corresponding to his/her needs;
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- communicate with the User.
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In addition, MARIH may use the data to meet its legal and/or regulatory obligations, if any. MARIH reserves the right to publish, disclose and use aggregated information (information about Users or specific groups or categories of Users combined in such a way that an individual User can no longer be identified or referred to).
- Time of collection
The data collected by MaRIH is freely communicated by Users, in particular when the User sends a request to MaRIH via the contact form provided for this purpose and/or by e-mail and/or on its social networks referred to in the legal notices, as well as by registering for the training courses offered on the Site. In any event, the personal data collected :
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- will be obtained and processed fairly and lawfully;
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- will be recorded for specific and legitimate purposes;
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- will be used in accordance with these purposes;
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- are adequate, relevant and not excessive in relation to these purposes; and
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- will take precautions to ensure the security and confidentiality of data to prevent it from being damaged, modified, destroyed or communicated to unauthorized third parties.
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- Consent
The present confidentiality policy is systematically brought to the attention of Users when they visit the Site. By checking the box:“I acknowledge that I have read and understood the privacy policy and I accept it”, the User consents to his/her personal data being stored and processed by MaRIH and/or any of its partners.
IMPORTANT: NOTE TO USERS
ANY BROWSING ON THE SITE AFTER PUBLICATION OF THIS PRIVACY POLICY IMPLIES UNRESERVED ACCEPTANCE THEREOF.
If the User wishes to withdraw his/her consent to the processing of his/her data, he/she may do so directly by sending an e-mail to the following address: contact@marih.fr.
In addition, where required by law and/or in certain circumstances, the User’s consent will be obtained or an opt-out facility will be provided prior to any transmission of data.
- Recipients of personal data
The recipient of the personal data collected on the Site is MaRIH. Personal data will not be communicated to third parties for commercial purposes. However, other recipients may have access to personal data. These include, where applicable, MaRIH’s resource providers in charge of the Site (administration, legal, etc.) and its external service providers (technical service providers, access providers, communications agencies, etc.). In the event of a change of control of MaRIH or any other form of transfer of assets, the data collected by MaRIH may be transferred to third parties. Nevertheless, MaRIH undertakes to guarantee the confidentiality of the personal data collected and to inform Users before such data is transferred or subjected to new confidentiality rules. In the event that this is required by law, the User’s consent will be obtained or a possibility of refusal will be provided before any data is transferred.
- User rights
In accordance with Regulation (EU) 2016/679 of the European Parliament and of the Council of April 27, 2016, known as the ” RGPD ” on the protection of individuals with regard to the processing of personal data and on the free movement of such data and Law No. 78-17 known as the ” Informatique et Libertés ” of January 6, 1978, amended by Law 2004-801 of August 6, 2004 relating to information technology, files and freedoms, the User has:
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- a right of access to personal data;
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- the right to modify personal data;
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- the right to rectify personal data;
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- the right to delete and erase their personal data;
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- the right to object to the use of personal data;
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- the right to restrict the use of your data; and
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- a right to data portability.
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Users wishing to assert one of their rights may send their request by e-mail or by post to the following addresses:
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- Postal mail: Hôpital Saint-Louis, Pavillon maladies rares, 1, avenue Claude Vellefaux – 75010 PARIS
- E-mail : contact@marih.fr
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In the event of exercising one of these rights, the User must provide MaRIH with the information required for identification: surname, first name, e-mail address, telephone number and, if applicable, postal address.
In addition, in accordance with the regulations in force, the request must be signed, accompanied by a photocopy of a signed identity document, be clear and specify in detail the right they wish to exercise, as well as the address to which they wish to receive a reply if they wish to exercise one of the rights listed above.
MaRIH undertakes to respond within a maximum of three (3) months following receipt of the User’s complete request.
Due to the complexity of the request and/or the number of requests, this period may be extended to six (6) months on condition that MaRIH informs the User of the reasons for the postponement within one (1) month of receipt of the request.
MaRIH informs Users of their right to lodge a complaint with the Commission Nationale de l’Informatique et des Libertés (hereinafter the “CNIL”). CNIL “) in one of the ways indicated below:
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- By phone: +33 1 53 73 22 22
- By fax: +33 1 53 73 22 00
- Via the CNIL website: www.cnil.fr/fr/plaintes or cnil.fr
- By post:
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Commission Nationale de l’Informatique et des Libertés – CNIL (French Data Protection Authority)
3 Place de Fontenoy
TSA 80715 – 75334 PARIS CEDEX 07
- Data retention period
8.1. Conservation des données suite à la collecte
The personal data collected from Users is not retained beyond the time necessary to achieve the purposes described in this privacy policy, except for data that MaRIH may need to retain as evidence, for legal or administrative purposes or in accordance with current legislation.
8.2. Conservation des données anonymisées au-delà de la relation entre MaRIH et l’Utilisateur
MARIH retains Users’ personal data for the time strictly necessary to achieve the purposes described in this privacy policy.
Browsing data will be kept for a maximum of six (6) months in accordance with CNIL recommendations.
After this period, they will be anonymized and kept exclusively for statistical purposes and will not be used for any other purpose whatsoever.
8.3. Suppression des données
Means of purging the personal data collected from Users are put in place in order to provide for their effective deletion as soon as the retention or archiving period necessary for the fulfillment of the determined or imposed purposes is reached.
- Links
On the Site and the Mast’O application published by MaRIH, Users may have access to various links directing them to third-party sites.
MARIH will not be responsible for any information that is sent to or collected by these third parties.
This Privacy Policy does not govern third-party sites or third-party content accessed by the Site User. MaRIH has no control over hypertext links.
Consequently, MaRIH does not give any guarantee concerning the personal data protection practices of the indexed websites and cannot under any circumstances be held liable in the event of a dispute arising between a website indexed on the Site and one of the Users, in particular for any loss or damage suffered, as the operators of the indexed websites are solely responsible for their personal data protection practices.
- Cookies
A cookie is a text file that may be stored in a dedicated space on the hard disk of the User’s computer when he/she visits an online service via his/her browser.
In practice, cookies are small text files that are placed on the User’s computer by the websites the User visits. They are used to operate the websites and improve their usability.
The cookie is transmitted by a website server to the User’s browser. Each cookie is assigned an anonymous identifier. A cookie cannot be traced back to an individual. When consulting the Site, Users are informed that cookies or other means of recording browsing data are used by the Site, or by third-party service providers for the Site, and deposited on the User’s terminal (computer, mobile or tablet).
MaRIH may install, subject to the User’s acceptance, various cookies, in particular :
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- session cookies, which disappear as soon as the User leaves the Site;
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- permanent cookies, which remain on the User’s terminal until their lifetime expires, or until the User deletes them using their browser’s functions; and
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- statistical cookies (used to measure the Site’s audience).
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Only the sender of a cookie can read or modify the information contained in it. In accordance with the recommendations of the French Data Protection Authority (CNIL), the User will be expressly asked to accept the Site’s cookies when connecting to the Site for the first time.
10.1. Finalité cookies
The cookies used by MaRIH make it possible to identify Users, to recognize their browsers when they consult the Site, to record their access frequencies (traffic measurement) and the display preferences of the User’s terminal, to adapt and/or personalize the presentation of the Site to improve the User’s experience and to optimize the Site for the sole purpose of providing the services requested by the User.
In addition, the cookies used on the Site are based on the International Chamber of Commerce’s guide by category:
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- strictly necessary
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- functional.
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10.1.1. Les cookies strictement nécessaires
Strictly necessary cookies enable the User to browse the Site. These cookies do not collect any information about the User that could be used for marketing purposes.
MaRIH uses these cookies to :
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- ensure the operation of the Site;
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- secure forms and protect them against malicious scripts.
MARIH does not use cookies to :
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- collect information that could be used to promote services to Users; or
- remember the User’s preferences or name after visiting the Site.
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10.1.2. Les cookies de fonctionnalité
These cookies are used to provide services or to remember the User’s settings in order to improve the User’s visit to the Site. MARIH does not use cookies to collect personal information that could be used to promote products or services for the User on other sites.
10.2. Durée de conservation des cookies
In accordance with CNIL recommendations, cookies are kept for a maximum of thirteen (13) months after they are first stored on the User’s terminal, as is the period of validity of the User’s consent to the use of these cookies. The lifetime of cookies is not extended with each visit. The User’s consent must therefore be renewed at the end of this period.
10.3. Droit de l’Utilisateur de refuser les cookies
When browsing the Site for the first time, a banner explaining the use of cookies appears. It enables the User to activate or deactivate certain cookies. The banner will only disappear once the User has accepted, or not, the use of cookies in order to continue browsing.
Registration of a cookie is subject to the User’s consent. In accordance with legal and regulatory provisions, MaRIH obtains prior consent for the deposit of cookies.
Users therefore have the option of configuring their browsing software in such a way as to oppose, totally or partially (in particular depending on the issuer), the recording of cookies. The configuration also offers the possibility of accepting or refusing cookies on a one-off basis, before they are stored on the User’s terminal.
Users who wish to prevent cookies from being saved can follow the procedure specific to each browser and described in the browser’s help menu.
- Chrome :
https://support.google.com/accounts/answer/61416?co=GENIE.Platform%3DDesktop&hl=fr
- Internet Explorer :
https://support.microsoft.com/fr-fr/help/17442/windows-internet-explorer-delete-manage-cookies
- Edge:
https://privacy.microsoft.com/fr-fr/windows-10-microsoft-edge-and-privacy
- Safari :
https://support.apple.com/fr-fr/guide/safari/manage-cookies-and-website-data-sfri11471
- Firefox :
https://support.mozilla.org/fr/kb/activer-desactiver-cookies-preferences
- Opera :
http://help.opera.com/Windows/9.20/fr/cookies.html
However, in the event of opposition to the recording of cookies or the uninstallation of a cookie, Users are informed that certain services may no longer function correctly.
- Transfer of personal data abroad
MARIH processes User data only within the European Union and does not transfer such data outside this area.
However, in the case of international transfers outside the European Union, a distinction must be made between :
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- countries which have been the subject of an adequacy decision by the European Commission: in this case, the Data is transferred to a country ensuring a level of protection deemed sufficient and adequate to the provisions of European data protection regulations; and
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- countries whose level of data protection has not been recognized as adequate: in this case, to guarantee a transfer in compliance with European regulations, and in particular to ensure data security, MARIH will base its transfer on protection mechanisms adapted to each service provider and subcontractor, such as the conclusion of standard contractual clauses approved by the European Commission, the application of binding corporate rules or under an approved certification mechanism.
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- Pixel tags
MaRIH may use pixel tags (also known as ” web beacons ” or “clear GIFs “) and other similar technologies to collect information about the use of the Site, in accordance with the RGPD
Pixel tags are invisible graphic files integrated into the Site that make it possible to track Users’ activities and collect information on the devices and browsers used to access the Site.
The information collected by pixel tags may include personal data, such as IP address, browser type, pages visited, access times, and other information about interaction with the Site. In compliance with the RGPD. MaRIH processes such personal data on the basis of users’ consent and its legitimate interest in improving and personalizing the user experience and analyzing trends.
If the User has the right to withdraw his consent at any time, to request access to his personal data, to rectify them, to delete them, to limit their processing, to object to their processing, and to request their portability. To exercise these rights, please contact MaRIH by e-mail.
By using the Site, the User consents to the use of pixel tags and other tracking technologies in accordance with this Privacy Policy and the GDPR.
If the User does not want MaRIH to use pixel tags or other tracking technologies, the User can adjust their browser settings to block these technologies or unsubscribe from certain third-party tracking services.
- Security
MaRIH undertakes to implement appropriate and reasonably necessary technical and organizational measures with regard to the regulations applicable to the protection of personal data, including protection against unauthorized or unlawful processing and against accidental loss, destruction or damage, in order to guarantee a level of security appropriate to the risks incurred for the rights and freedoms of natural persons in connection with the processing referred to in this privacy policy.
When personal data is transferred to third parties for processing, MaRIH ensures that these third parties implement all appropriate technical and organizational measures to ensure the protection of personal data in accordance with applicable laws.
These measures are defined taking into account the state of the art, the costs of implementation and the nature, scope, context and purposes of the processing, as well as the risks identified.
Depending on needs, risks, costs and the purpose of processing, these measures may include data pseudonymization and encryption.
This protection can be ensured by the mention of ” https ” in the browser’s URL address, and by the representation of a closed padlock at the bottom of the screen.
Finally, in the event of a violation of rights concerning personal data likely to generate a high risk for the rights and freedoms of the User, MaRIH undertakes to inform the User of this violation within a maximum period of seventy-two (72) hours.
- Changes to the privacy policy
MaRIH reserves the right to modify and update this privacy policy at any time, in particular in order to take into account any legal and/or jurisprudential developments and to meet the requirements of the regulations applicable to the protection of personal data.
MaRIH will inform Users of any significant changes or updates to it by e-mail.
The prevailing version is that which is accessible online on the day the Site is consulted.
Any consultation of the Site after publication of the modified confidentiality policy implies unreserved acceptance by the latter of the new confidentiality policy.
- Contact
14.1. For any inquiries or to find out more about the processing of their personal data, including the exercise of their rights indicated above, Users may contact MaRIH using the contact form or by e-mail or post at the following address:
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- Postal mail: Hôpital Saint-Louis, Pavillon maladies rares, 1, avenue Claude Vellefaux – 75010 PARIS
- E-mail : contact@marih.fr
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14.2. For any claim or dissatisfaction in connection with the use of his personal data by MaRIH, the User may contact MaRIH using the contact form or by e-mail or post at the following address:
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- Postal mail: Hôpital Saint-Louis, Pavillon maladies rares, 1, avenue Claude Vellefaux – 75010 PARIS
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- E-mail : contact@marih.fr
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14.3. When the User contacts MARIH, he/she will be asked to identify him/herself.