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Primary amyloidosis and others immunoglobulin deposition diseases
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Gammapathies Monoclonales De Signification Clinique (MGCS) : Atteintes Cutanées
Acquired and inherited aplastic anemia
Diamond-Blackfan anemia
Paroxysmal nocturnal hemoglobinuria
Fanconi anemia
Autoimmune hemolytic anemia
Immune thrombocytopenic purpura
Evans syndrome
Histiocytosis
Maladie d’Erdheim-Chester
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Request for expert opinion on genomic RCP
Booklet “Rare Diseases Healthcare Networks”
Medical and Social course
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Vocational Integration – Keeping People with Disabilities in Employment
Departmental House for the Disabled (MDPH)
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The industry
Presentation of the sector
Missions
Gouvernance
Centres of Reference for Rare Diseases
Find a specialist
Members
Research/diagnostic laboratories
Patient associations
Scientific societies
Others French Healthcare Networks for Rare diseases
Partners
Pathologies
Primary amyloidosis and others immunoglobulin deposition diseases
Gammapathies Monoclonales De Signification Clinique (MGCS) : Atteintes Cutanées
Bradykinin-mediated angioedema
Acquired And Inherited Aplastic Anemia
Acquired and inherited aplastic anemia
Diamond-Blackfan anemia
Paroxysmal nocturnal hemoglobinuria
Fanconi anemia
Autoimmune cytopenias
Autoimmune hemolytic anemia
Immune thrombocytopenic purpura
Evans syndrome
Primary immunodeficiency
Histiocytosis
Histiocytosis
Maladie d’Erdheim-Chester
Castleman disease
Mastocytosis
Thrombotic microangiopathy
Chronic neutropenia
LGL proliferation
Hypereosinophilic syndrome
Care
Expert opinion RCP
Expert Opinion
Request for expert opinion on genomic RCP
National Protocols for Diagnosis and Care – Recommendations
Orphanet Emergency / Disability files
Therapeutic patient education programs
Transition from Pediatric to Adult Service
Find a specialist
Training
MOOC MaRIH
University qualification « Immunohematology and Internal Medicine »
UQ « MAT and other immunological diseases of hemostasis »
Clinical quizzes
MaRIH magazines
Post-ASH magazines
Research
Current Calls for Proposals
Ongoing clinical trials
MaRIH Research Grant
Information
Useful patient documentation
Expert-Witnesses Videos
Audio Podcasts
Booklet « Rare Diseases healthcare networks »
Medico-social area
Booklet “Rare Diseases Healthcare Networks”
Medical and Social course
Departmental Education Services Directorate
Health Info Rights
Vocational Integration – Keeping People with Disabilities in Employment
Departmental House for the Disabled (MDPH)
Right to borrow
Home
Medico-social area
Orphanet booklet "Living with a rare disease in France".
Orphanet booklet “Living with a rare disease in France”.
https://www.orpha.net/orphacom/cahiers/docs/FR/Vivre_avec_une_maladie_rare_en_France.pdf
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